Posted on Neil Miller’s Think Twice Facebook Page.
Dear Thinktwice (http://thinktwice.com/),
Reading through some of the posts on the site, many parents (such as myself) are questioning their intuition — that gut feeling that “something is wrong” as their child seems different now since the shot, or that their baby is behaving differently (crying, sleeping, jerking ect…) PLEASE follow your parental instinct and advocate on behalf of your child — unafraid, and do not allow the physicians to control and intimidate you. Be prepared to be told you are overreacting, or this is all normal.
I can assure you that high-pitched crying, oversleeping, any jerking is NOT normal and is consistent with an adverse reaction. My daughter was seizing 36 hrs after her DPT in 1988, as well, she was sleeping unusually more. The doctors told me I was an over worried mother, who’s baby was merely “tired” (yes, even her seizures were denied by the drs involved). My daughter was having up to 50+ petit mal seizures daily…1 & 1/2 days after her DPT.
My daughter today is 22 and is severely brain damaged, globally delayed with an uncontrolled seizure disorder. Unfortunetly, my daughter was not reported within the statute of limitations for compensation — we were a year too late to file. Be sure to report your child to VAERS, as doctors are not legally required to report and most likely will not. As a parent of a vaccine injured child…please become an informed and educated parent on both sides of vaccine safety and adverse reactions.
I’ve been reading on your site since the late 1990’s. I used to advocate a lot…only to slow down after the CDC heard of my story though an employee with VAERS. CDC Rep called me at home, to ask me to write a letter to then Senator Ted Kennedy. Of course, I did after pondering on it for a couple weeks. I didn’t think it would make much difference, though the CDC Rep advised that Ted was re-writing policies & submitting to Congress, to improving the statute on the Compensation Program. Ted never wrote back…though I heard from many other Sentators and Congressmen who read my story/letter. After many years of making many attempts to open up this closed book of vaccine injury, I just accepted, that I was a very small person…who was going to be pushed away by Government and the Medical Society, due to the nature of my daughter’s story.
Thank you for allowing parents to write, allowing a safe place to share their feelings, fears, concerns, and stories. It is such a sensitive and controversal subject…and one that goes untold in the media. Thank you for allowing parents, like myself, a place to feel heard and acknowledged, as in the medical world — no one wants to hear the stories. Too much money would be lost if we were all heard, right? :)